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This will be the last posting before Christmas Day and not the last for this year, so you will not be disappointed!
This year has been minimum effort on my part in the so called Xmas preps including present purchasing. As Maggie was under the weather at the start of this month, between us, we had mastered the grocery on-line shopping process and I honestly thought this was going to be the way forward! But oh no !! Things never materialise in the way you expect do they? There is no way in keeping my good woman down for long!! I am so very lucky to have her as my life partner.
Maggie has made significant improvement and is back to her normal self albeit a couple of notches down which I believe is due to the general aging process. What I observe most is that Maggie is able to climb our stairs without getting as breathless and having to sit down to recover. This is welcome news and relief. Her clinic appointment remains mid Jan 2014.
I had earlier availed myself of ClassicFM’s wine offer with Laithewaite’s Xmas box of assorted wines with 2 Dartington Crystal long stem wine glasses for £54 delivered. All I need to get a bottle of Blue Sapphire gin which is available now in all supermarkets for £15 litre bottle. Only to be taken with Schweppes tonic water!
Most of present buying by both of us has been done line. Once you know what is required, which is the hard part, we find it easy to GOOGLE search to locate the web shop of choice. Amazon is no longer the TOP site anymore and is not the cheapest like before. Their deliveries are still the best, however. We have made a point not to use them if at all possible because of their staff employment practices and clever tax avoidance. Argos, Lewis, Maplin and Play.com are good sites.
The weather in York has been relatively good this last fortnight, excepting for strong winds and squally showers. We have been lucky compared to many. Including our close coastal resorts of Scarborough, Filey and Whitby where the strong on shore winds coupled with high tides have left many flooded and coastal erosion causing house-slips.
I wonder how much of our total coastline has been lost forever thus reducing our island size. Yet more people come to live here than those who leave. This does not make sense to me.
Out strolling with Chipper, I try to nose into people’s properties. I think this a British thing to do!! Look at this old Morris Minor parked in a driveway
Mike & Chips
Don’t get me wrong – Christmas is a time for Children and Grown-Ups who haven’t.
I have had a few problematic days since my last blog. Its all to do with my well-being or in my case unwell-being. Getting used to the stronger Fentanyl patches for pain control is having effects like dull headaches, tiredness and a sense of feeling lost ; not being able to focus. Being spaced out with that glazed eye look. I hope all this will pass in time as I become more tolerant to the medicine. My back and hip pains have eased except for getting out of bed in the morning.!!! Be thankful for small mercies?
Surely there must be more worthy ways to spend money at this time with all the world’s disasters.
I am looking for exercise routines that are simple and effective. Preferably done together in a group. I have hit upon a couple of “tools” that can be used seated as well as standing (for those of us who can).
Take a look these two items (click on the pictures) :-
I would like to receive any comments you may have after reading this book.
See you soon and have a Very Happy Christmas (or Festive Holiday) and hope that 2014 will bring Health and Happiness wherever you are.
Mike & Chipper
A Strange Week
I have had a strange week. There was much Pain in my lower spine and sacro-illiac joints. This is all due to the Ankylosing Spondylitis (here’s a link for explanation) http://en.wikipedia.org/wiki/Ankylosing_spondylitis )
I struggled to see my GP to discuss my pain medication. I take a range of these as well as an anti-inflammatory. Over time the body becomes tolerant to the levels of this medication. I take Fentanyl (http://en.wikipedia.org/wiki/Fentanyl) patches 50′s and Targinact (http://en.wikipedia.org/wiki/Targinact)
On my scoot into our village as I was nearing the charity shop, I saw this hilarious sight……………………….
A mad crazy time for us living in York. My children live away and love visiting together with all their kids. The house becomes a giant playhouse for the week with children all over the place. They come complete with minimal clothes (washing machine and dryer never rest!), X-box with 2 controllers, Kindle, Tablets, Nintendo 3DS, mobiles (even the 3 year old has one!) and not one single book in sight! But the 3 youngest do like a bedtime story or two.
Although the sun was shining, the expected wind was present and I was pleased that I wore my wind proof jacket, hat and gloves. I unloaded my new electric chair and we all set off. Filey beach is about 500ft down from the town.
Hello my Friends
This way, a disabled person can still drive. Assuming that is, you have a driving licence and able to keep one as your disability progresses. Read further on for this issue……………
I hope you read last week’s post – ‘How can this be a HOLIDAY?’ and eagerly awaiting to see what went on.
There were no rattles! I hate superfluous noises coming from inside the car when moving. As Maggie drives (wait until I use the hand controls!), I sit and listen out for these things. Chipper sat on a rear seat, wearing his car harness, all the way like a good ‘un ; we stopped once at Peterborough service station for a break.
We just smiled and drunk own coffee and eat the ‘sarnies’.
We eventually got to our destination – The Premier Inn, north Ashford, Kent. I launched the power chair from the boot via the electric hoist on my own. Bravo! Hooked up Chipper to the chair and scooted off to find a watering hole. Not a single patch of grass anywhere and we are in the middle of Kent! So he found a tree and cocked his leg in sweet relief.
Maggie unpacked the car, booked in and put the kettle on. The front doors were open as I drove into reception and acknowledged the greeting. I could not get into my room!! The corridor was too narrow for my chair to turn! So I had to open the bedroom door and enter the room at an angle whilst scrapping the walls! Good start eh? It gets better! No shower only bath with high sides, double bed not singles, bed too low with the mattress like jelly.
Suitable polite inquiries were made at reception to no avail. All disabled rooms are the same. Oh well – welcome to my world of disability. Could not sleep, woke with chronic neck and back ache every day. Grrr. And decidedly grumpy. Take your pills Mike and shut up. At least Chipper liked the bed!
The Premier Inn have a ‘Sleep Guarantee’. Full refund if you can’t sleep!’ I await to hear from their “Complaints Manager” to my grunt list.
If we get a full refund, I will give £25 to the first person who leaves a reply with the name of their chosen charity. I like to give.
The weekend was spent with our son and tribe – 4 boys and 2 girls. No- they are not Roman Catholic! They fork out the equivalent of a mortgage repayment in monthly rent as they both have poor credit ratings. Past misdemeanors catch up on you in the end. It cost us a small mortgage to have a takeaway delivered but we had fun. They have a happy home which is all that counts.
That was our five nights away. Exciting wasn’t it??
Til next time
Don’t rise to it………….
How can this be a holiday?
I do live in the UK and I am not a regular guy. I am classified as ‘disabled’ but I read myself as guy with issues!
The issue list grows as I go through various medical episodes; the last being a stroke. Thankfully I have made a reasonable recovery. My grand kids lovingly call me ‘grumpy Mike’ or behind my back, ’ole fartface ’. I do shuffle along the ground with my quad feet walking sticks and use a wheelchair or power scooter when out of doors.
Chipper, my newly acquired 2 year old assistance black Labrador, trots obediently alongside both my appliances sporting his Canine Partners purple jacket. Woof woof!
Leaving home for more than a day is a logistical nightmare. Suffering with a number of medical issues does mean that I need at least 2 luggage cases plus a carrier bag or 2 or 3.
I must pack the following:-
- Clothes with extra boxers
- A weeks supply of medication with extra laxatives and painkillers
- A weeks supply of ISC’s (intermittent self catheters)
- Anal irrigation kit (use your imagination) and pads
- Medical waste disposal bags, wipes, hand gel
- Dog food measured out for twice daily feed, lead, special jacket, dog playing toys, whistle, dog seat belt, collapsible water bowl, regular food bowl and yes…………. adequate supply of poo bags!
- My expensive Tempur back and neck pillows
- Entertainment devices
I would love to hear from you if you can.
And this is not all……………….
All the luggage – my wife’s meagre pile and mine have to be placed strategically around the chair and on 2 of the rear seats. Chipper takes up the remaining 3rd seat. If you were wondering what sort of vehicle is needed for all this lot – it is a Ford Galaxy Titanium, courtesy of Motability Operations UK.
I will leave the question as to whether we enjoyed our 5 nights away from home until the next blog post.
If you have landed on this website, you are curious about your health issues and wonder if you may learn something new. I do hope so!
My desire with this website is to provide resources, information, case studies and signposting for anyone who considers themselves suffering from a disability of one form or another. The purpose is to make you feel able to live as comfortably as you can with others around you in your world.
One of the essential aspects of the website is to help you to come to terms with a disabilty and to learn the art of Acceptance.